About Me

When I met my fiance, I learned early on in our relationship that he had some kind of joint condition, but I didn't know what it was. All I knew was that his joints dislocated easily and he had little in the way of support around his joints. When he told me it was Ehlers-Danlos Syndrome, I had no idea what that was. I decided that, if we were going to have a future, I wanted to understand. I've researched the condition and its effects in depth for the last several years. Since it's so little-known, I wanted to create this site to help others understand what it is and how to manage it. If you've discovered that you or a loved one has Ehlers-Danlos, I hope this site helps you understand it better.

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